I have really fond memories of my childhood birthday parties. I’m a lucky girl because every year, my parents organised a really cool event to mark my new age, either hiring a hall and an entertainer with lots of music and balloons to bat around the place, magician’s at our house, arranging for myself and […]

It’s that time of year again when Christmas shopping dominates many conversations and we start to search our brains for ideas of what to get Jude. Jude isn’t your typical child who loves to receive toys and the the latest fad gadget. He doesn’t play with things “properly”, doesn’t really understand most activities aimed at […]

So how many people does it take to maintain a Jude?    This evening I was thinking of all the people we have in Jude’s “team” right now and I took a moment of pride in realising that everyone involved in Jude’s life is totally awesome. I felt awful driving Jude back to school last […]

Taking on a new role

Elsa and Jude almost three years ago in their favourite cafe     Jude is having a fantastic week, he’s settled and calm and one of his beloved Support Workers has today returned from a holiday. I called him this evening and we chatted for a world record breaking twelve minutes! I then chatted to […]

  I went along to a GP appointment with Jude yesterday late afternoon and felt completely undermined. It’s the GP surgery used by Jude’s school for all of their pupils so a first time for me attending their clinic. I feel ashamed to say that all my usual steely strength disappeared from the shock of […]

So Elsa and I went to see Jude yesterday and to take him out for lunch. It went amazingly well, no issues with him leaving the house, no real anxiety and a fun time had by all. A few hours later, I returned a very happy boy back to his beloved house with his lovely […]

Water!

I’ve mentioned it before but Jude has always loved and always been drawn to water.   I don’t know exactly what it is, perhaps it’s the blurry sounds or the light reflecting movement or how it feels against your body but being around water is Jude’s happy place. At school as a littley they used […]

It’s Friday evening, Jude and Elsa have gone to their dads for the weekend and peace is slowly starting to take over from the frazzled hazardous energy that Jude leaves in his wake. It’s amazing how quick you can get used to living like a “normal” family without his daily presence and I wonder now, […]

Jude as a four year old. What a cutie.   In the midst of a thoroughly crap evening with Jude, I thought I’d embrace the happier side of living with a Jude and highlight his favourite ten things. He’s a boy of unique taste so I doubt many can relate to the following in it’s […]

  Jude’s first full day back at home and it hasn’t been too bad. To begin with, I had to take Emmeline to the fracture clinic for another check of her arm (cast off next week!) so my mum kindly looked after Jude for me. There is no way Jude would embrace a long wait […]