Disability Issues Archive

How has your week been?

  Mine has been ¬†mental.   I think that word sums up the majority of my weeks at the moment though. I’ve been working full time hours for the last month and a half and …

Birthday Parties

I have really fond memories of my childhood birthday parties. I’m a lucky girl because every year, my parents organised a really cool event to mark my new age, either hiring a hall and an …

Maintaining a Jude

So how many people does it take to maintain a Jude?¬†   This evening I was thinking of all the people we have in Jude’s “team” right now and I took a moment of pride …

Walk a mile in my shoes…

  I went along to a GP appointment with Jude yesterday late afternoon and felt completely undermined. It’s the GP surgery used by Jude’s school for all of their pupils so a first time for …

We are lucky

So Elsa and I went to see Jude yesterday and to take him out for lunch. It went amazingly well, no issues with him leaving the house, no real anxiety and a fun time had …

Water!

I’ve mentioned it before but Jude has always loved and always been drawn to water.   I don’t know exactly what it is, perhaps it’s the blurry sounds or the light reflecting movement or how …

Flippin’ ‘eck that was hard work!

It’s Friday evening, Jude and Elsa have gone to their dads for the weekend and peace is slowly starting to take over from the frazzled hazardous energy that Jude leaves in his wake. It’s amazing …

Ten things loved by a Jude

Jude as a four year old. What a cutie.   In the midst of a thoroughly crap evening with Jude, I thought I’d embrace the happier side of living with a Jude and highlight his …

Jude’s first full day of half term

  Jude’s first full day back at home and it hasn’t been too bad. To begin with, I had to take Emmeline to the fracture clinic for another check of her arm (cast off next …

What do you do during the school holidays?

It’s not easy entertaining an SEND child during the school holidays.   I always laugh (to myself) when I hear parents of neuro-typical children lamenting how arduous and exhausting the holidays are, wondering what to …