disabilities Archive

Coping with noise

  I haven’t said this for a while but we had a really good weekend! And when I say a good weekend, I mean Jude wasn’t a nightmare. He’s changed a lot recently, more chatty, less …

Direct Payments

  A while ago I think I mentioned how I was hoping to transfer Jude’s Jubilee House hours into Direct Payments so we could hire a Support Worker for him once a fortnight. Well, as you …

Blood Test at the QE2 Hospital

So to counter how upset many of you felt about the letter I published last week (still awaiting a reply from the lady it was forwarded on to – the Director of Children’s Services) I …

Writing to Santa

Weirdly, for the first year in a long time I have a good idea of some of the presents I want to buy…sorry, we’re going to ask Santa for…for Christmas. I mentioned a while ago …

Family Fund article

There’s nothing in this linked post that you don’t already know but I was asked by Family Fund to write about our support crew and who it involved. For me having a support crew is all …

Autism and change

My mum attempted a brave thing today. She called me up at lunchtime and said she wanted to move the furniture in Jude’s room around and put some posters on the wall; despite knowing Jude …

Crap Mountain

Now, I know my organisation skills leave a lot to be desired BUT do you ever feel that you are drowning? I get this sense literally every day and I know how easy it is …

School Transport

Children attending special needs schools often take council funded buses or taxis to school because they are generally not your local school distance away. Jude for example, currently attends a school which is about nine …